Following a rigorous process to establish operation readiness, the South West GMC was given permission to begin recruitment to the rare disease arm of the project on 21 April 2015. Only a few days later, on the 24 April, we welcomed our first family.
The recruitment of the patient made the news, with interviews and articles appearing on Radio Exe, BBC Radio Devon and Heart FM. The story was published in print and online by the Exeter Express and Echo and the Western Morning News, in print by View From Honiton and online by The Exeter Daily, View From publishing and Medical Xpress, as well as featuring on the RD&E and University of Exeter Medical School websites.
We are encouraged by the support of the media and hope that it will raise the local profile of the study.